Daily Plan: Tuesday

September 1, 2009

Day 5 0f PMS migraine. I woke up this morning without it and got all happy, but it was back by 10 and steadily building.

I had a long-distance intutitive healing session today with Leonie Allen. We worked on balancing out the energy in the pineal, pituitary, thyroid, adrenal, and reproductive glands. My pineal is all kinds of fucked up. My thyroid is worn down and pissed that it’s getting blamed for everything. Leonie asked me to “ask” my thyroid gland what it needs to feel better and blanced and immediately “MEAT” came to mind. Which I barely know how to cook. But okay. So be it.

I did manage to go to the gym and meet with a trainer to get a weight training program set up. I was very nervous because Danes are notoriously brusque, not shy about telling you you’re fat, and not usually very flexible. But my trainer, Jennette, totally “got” my medical situation and set me up with 3 leg exercises, 3 upper body exercises (but none that strain my neck), and 3 back/abs exercises. I can do the whole thing in 40 minutes, and she helped me set the weights quite low so I’m not uber sore the next day. (With chronic pain, if you make yourself sore in any one place, it can flare the pain in your chronic place. So sore gluts can mean a sore head.)

I finally got home, showered, ate meat. Now my pain level is hovering around a 5, and I’m going to try to get a bit of work done. Once it’s up at a 7 I’m toast. I’m hoping to write the *8 Things Posts for this month today. Then I have to think of something very easy to cook for dinner. Because by the time I walk to and from school to pick up Catie, my pain will be too high to follow a new recipe.

I’m trying to remember that even if I am not well enough to write, any work I do towards the book project “counts.” So my time on the phone with Neil this afternoon doing design work will still be a step in the “finishing” direction.

Daily Plan: Monday

August 31, 2009

It is day 4 of a PMS migraine and I am at my emotional end. Spent the morning sobbing. And I mean gut-wrenching scare-the-neighbors sobbing. It is MUCH harder to face the pain after it’s been on vacation for awhile. All the fear rises up and you really feel like it’s never going to stop ever, ever again.

But it does. It will.

So I took one of my precious $12 a tab Relpax, which I can’t take more than 3x a month without rebound migraine. I feel tired now, because all the blood vessels in my body have been chemically constricted. But I hurt less. It’s a start.

Stats:
Monday’s Weight: 168.5 (same)
My Body’s Preferred Weight: 140
Gluten Free Since: July 2009
On the Wagon:  7 days (fell off while traveling. England has scones, people!)

Today’s Motion
20 minutes yoga to John Mayer tunes
two 15 minutes walks to and fro from school (30 min total)
(that’s all – did I mention the massive migraine?)

Pain Management Plan:
breathe, drink water, and hope for the best

Eating Options:
Breakfast
fried egg with cheddar cheese
peach
herbal tea with skim milk and agave syrup

Lunch
1 gf cracker with tuna salat
3/4 c (?) gf peach crisp

Dinner
palm sized piece of steak
roasted vegetables (taters, carrots, red bells)
grilled eggplant

Snacks
diet cola (don’t judge me, I can’t eat bread or sugar!)

Sunday

August 30, 2009

Third day of PMS migraine.

Nothing good to eat.

Massivelyburned hand on oatmeal, which btw, sticks  like napalm.

F**k this.

Daily Plan: Saturday

August 29, 2009

Stats:
Monday’s Weight: 168.5
My Body’s Preferred Weight: 140
Gluten Free Since: July 2009
On the Wagon: 5 days (fell off while traveling. England has scones, people!)

Eating Options:
Breakfast
3/4 c gf museli
1/3 c vanilla yogurt
1/2 nectarine

Lunch
sushi?

Dinner
ground beef with taco spices, onions, salsa
cheddar cheese
sour cream
avacado
tomatoes
lettuce
corn taco shells

Snacks

Today’s Motion

Pain Management Plan:

Field Notes:  Yesterday around 4:30 I came down with a massive migraine. I felt like it was punishment for actually going out and exercising — even tho I felt great at the pool for the first time since I’ve been diagnosed. (Hurrah! The iron is working!) Somehow the migraine just felt like a huge “Fuck You” from my body.

For migraines I take a pain medication which gives me incredible munchies. I did okay thru dinner, but when I woke up at 1am I binged my way thru the carbs. 😦 I’m not sure what to do about that as I often wake up ravenous with insomnia 2-3 hours after I go to bed. The hunger is worse when I have to medicate, which thankfully is far less often than it used to be.

This morning I woke up with bad cramps. All I want to do is lounge around all day watching bad TV and eating comfort food. Right now I’m waiting for the heating pad to warm up in the microwave. Still, I’m making a plan and hoping for the best. Since I don’t have to go anywhere today I might wear my yoga gear all day in case the cramps back down enough for that, and at least I already got in a small walk.

Stats:
Monday’s Weight: 168.5
My Body’s Preferred Weight: 140
Gluten Free Since: July 2009
On the Wagon: 4 days (fell off while traveling. England has scones, people!)

Eating Options:
Breakfast
kid’s leftover scrambled eggs
sm gf banana muffin
skim milk

Lunch
leftover chicken dinner or
3 gf wasa crackers
4 T tuna salat w/mayo and corn
sliced cucumbers or tomato

Dinner
palm size portion of roasted chicken
1 med thin skinned potato, plain
roasted carrots and red peppers
1 gf wasa cracker

Snacks
1 gf wasa cracker with nutella
2 slices gf banana bread w/butter

Today’s Motion
25 min walk to skole + long way home
10 min yoga
15 min walk to/from skole for pick up

Pain Management Plan:
run PMS and liver support support programs on microcurrent machine
20 min nap in afternoon

Total Water: 1 liter plus 1 pint

Stats:
Current Weight: 168.5
My Body’s Preferred Weight: 140
Gluten Free Since: July 2009
On the Wagon: 2 days (fell off while traveling. England has scones, people!)

Eating Options:
Breakfast
4T tuna salat
2  gf wasa crackers
3 slices tomato
cranberry juice (w/sweetners) and mineral water
gf oatmeal cchip cookie

Lunch
1/2 c gf museli with 12 almonds
1/2 c vanilla yogurt
1 small banana
.5 L water
.5 L diet cola

Dinner
palm-sized portion of roasted chicken
1 large thin-skinne potato
2t butter
2 T sour cream
carrots & red peppers
fruit salad: nectarines, bananas, grapes
2 pints water

Snacks
apple
chedddar cheese -or-

2 gf crackers with nutella and dried cherries
1 gf banana muffin and skim milk

Massive post-medication/late night insomnia binge: 4 gf oatmeal chocolate chip cookies, 2 sm gf banana muffins

Today’s Motion
15 min walk to/from skole
15 min bike to/from train station
30 min swimming
30 min bike to/from choir practice

Pain Management Plan:
 run digestive-support programs on microcurrent machine
nap if neccessary in afternoon

Why Learning Curves?

August 27, 2009

I’ve been struggling with chronic pain for years now, since about 2002 or so. I was diagnosed with status migranosis, which basically means I have a migraine all the time. “Intractable pain” is the term. No one knows why.

This year I saw my 31st medical practitioner. Needless to say, I was not a little ray of sunshine going in there. But when Jeanette told me that most of her patients had seen 25 doctors before they finally came to her, I perked up a teeny tiny bit. When she asked me if I thought I could get well, I started crying. “No,” I said, “I assume I’ll be in pain the rest of my life. I’d just like to keep it down to a manageable level.”

That was two months ago. Now, there are days that I’m pain free. All day. Not most days, but some days — which is something I have not been able to say for a long, long time.

Long story short: severe anemia due to celiacs disease which is causing all kinds of system meltdowns. As it turns out your brain will hurts if you have no iron in your blood. Huh. Who would have thought.

So this blog is for me — because I have a big learning curve ahead of me. I need to focus to learn how to manage what’s left of the chronic pain; to learn how to re-build my body and adapt my rest/work schedule as I improve; and mostly to learn how to eat all over again.

I doubt this will be of interest to many people, but hey, if this rings some of your bells and you want to hang out, that would be great. See you around!

Rachelle Mee-Chapman

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